Charlene's Story
August 10, 2010 - I have more good days than bad...
Tue, Aug 10 2010 by Charlene
Usually I have more good days than bad, but yesterday was a bad day. My hair has been gradually falling out for days but yesterday morning in the shower it was literally coming out in HANDFULS so much so that I decided to get out of the shower for fear of clogging up the drain big time.
I used a comb to brush through my hair and with each swipe of the comb another giant rats nest of hair came out in my hand and into the trash can. I recruited my husband to shave the rest of it off with his set of clippers.... what a relief that was! Watching the hair come out in dribs and drabs was WAY more stressful than just cutting it all off. Having no hair is weird, mostly because my scalp is so sensitive that I can feel the breeze outside swirling around my head a new sensation for sure. My hair follicles are still dying and therefore my head is still a little on the sore side and putting my head on the pillow at night can be a bit uncomfortable. Steve says that I look like Gorbachov because I am completely bald in some spots and have peach fuzz in others making it a bit blotchy looking, he wants to shave it, I'm going to live with the fuzz for a few days first and see how I feel.
I also am having MAJOR constipation (I know TMI) from the anti-nausea drugs and also swollen glands in my throat. I went to my PCP yesterday and she suggested Miralax and Senekot, I started them yesterday and they seem to be helping *a little*, I seriously cannot wait until I get past this.... it's PAINFUL.
Steve continues to give me the damn Neupogen shots, we still haven't figured out the right speed to push the meds in, too fast burns and too slow stresses me out, I feel bad complaining when he's doing it because I know he feels bad hurting me, but sometimes I can't help it - it hurts!!!!
Today I am feeling much better, friends stopped by today and dropped off some tasty treats and I got to go for a ride to get an ice cream in a Corvette this afternoon, that was fun and a good distraction!
I can't wait until I feel like myself again.... to be continued....
Next >>
<< Previous
Comments
- No comments have been entered for this post.